Tag Archives: celiac disease

I’m gluten-free. I’m single. Do I need Gluten Free Singles?

Gluten Free Singles dating site

I am a gluten-free single. I have celiac disease, so I’ll never eat gluten again. I do still want to date…but what does that have to do with gluten?

Judging from the response to the newly launched dating site Gluten Free Singles (hereafter GFS), the majority opinion is “nothing.” Reactions to the site from the non-gluten-free have ranged from bemused to dismissive to downright derisive.

But the premise isn’t really all that crazy. Here’s why:

1) Eating gluten-free (really, truly, not-continuing-to-damage-your-body-through-lax-adherence gluten-free) is hard. Lots of packaged foods are off the table, and it’s recommended not to eat out at allanywhere, until your symptoms have resolved, which can take six months to two years. Even then, most places boasting “gluten-free” menu items aren’t actually trustworthy. One bread crumb or a few drops of soy sauce cause harm, and most restaurant kitchens are too cramped and frenetic to prevent such contamination. Eating at someone else’s house? Forget about it.

2) Dating someone who isn’t gluten-free, if you’re gluten-free, is really hard. Not only because the person might not fully get it or even believe you. And not only because our dating culture is so intertwined with food—think dinner dates, ice cream cones on the beach, romantic home-cooked meals in. It’s also because you, as a gluten-free person, might not want to hold hands with someone who was just holding a sandwich, in case you forget and touch your own food afterwards. Or you may not want to tongue-kiss someone who drinks beer, because research suggests that food particles linger in saliva for hours in high enough quantities to trigger reactions. And, eventually, if you start thinking about moving in together, you won’t want your squeeze to move a bunch of gluten into your kitchen. Cross-contamination city.

3) Convincing someone who doesn’t need to eat gluten-free to eat gluten-free just so you can be together is really really hard. Because, let’s face it, eating gluten-free kinda sucks.

Given all of this, when I was diagnosed in January, my usual priorities—from intellect to appearance to love of board games—shrank to nothing compared to the need for a significant other to be either gluten-free or super supportive. (Here’s a flowchart demonstration.)

Since GFS didn’t then exist, I set out to hack OkCupid into a gluten-free dating site of my own. Under “stats,” you can label your diet vegan or kosher, but not gluten-free (an unfortunate oversight), so I couldn’t search that way. Instead, I dropped my usual criteria (“single,” “needs photo,” “minimum height,” even “male”—because if I’m going to make this work, I’ll need to be flexible) and searched by keyword. Show me, I asked, anyone who has mentioned “gluten” or “celiac” in their profile. ANYONE.

At that point, I learned why dating, even with gluten-free boys, is still hard:

1) The options, even in a metro area, are scant. After weeding out the profiles that claimed, “I love anything with gluten” or, perhaps worse, “I’m gluten-light,” I was left with…not many.

2) Not every gluten-free boy likes me. Of the handful I messaged, only half responded. Huh, I thought. Don’t they know they need me?

3) I don’t like every gluten-free boy. I learned this after meeting up with two of them. They were nice enough, but it turns out there’s more to compatibility than gluten-free.

I decided to put the whole thing on ice and focus more on fixing my own intestines than on finding a matching set. I learned my way around the diet, hunted down new recipes, started a blog. As for dating? Let it be, I thought. It’ll happen.

Six months later, I’m still single. You see? Gluten-free dating is hard.

Enter GFS. The solution, right? Well…maybe. It levels the playing field, sort of. Everyone is gluten-free, so you can concentrate on things such as, say, your sexual orientation. If the site manages to amass a large enough pool of daters, it could make dating more convenient.

At first glance, such convenience is appealing. But on further examination, it’s less so. In the founders’ words, this is a network in which “you never have to feel alone, awkward, or a burden because you are gluten-free.” This implies that around “normal” people, you do feel this way—but that shouldn’t be the case.

Of course, shared qualities and logistics play a role in every relationship. Some long distance relationships fizzle, and some couples whose lifestyles don’t mesh call it quits. But, says the idealist in me, those aren’t the relationships I want. I want a relationship in which we do compromise—even in big ways—and do it well, without breeding resentment.

My family and close friends, for example, have gone above and beyond in accommodating my gluten-free diet. My parents bought new cutting boards, bowls, and cooking utensils when I visited, because those things can harbor gluten. A friend brought gluten-free groceries to my “safe” kitchen and cooked for me there. My sister agreed not to eat gluten at home when we moved in together (and then found out she had celiac disease herself—but that’s a different story).

I don’t take their consideration for granted, but if these loved ones can do it, can’t a lover do it, too?

To join GFS seems almost to answer that with “no”—to suggest that a guy wouldn’t find me worth compromising for. I don’t want to send that message to a potential date, and I don’t want to date someone who feels that way about himself, either.

My dad has always said that true love is waking up to make coffee every day even if you don’t drink it yourself. In an admittedly larger way, that’s what I want for myself. I wouldn’t say no to a gluten-free boy (or hell, who knows, a girl), but only if we also fit in other ways. Should that match not appear, I’m sure I can find love with a non-gluten-free boy, one who will look out for me as loving people do—that daily cuppa, if you will.

I’m not saying there’s nothing appealing in the idea of meeting someone who shares my lifestyle, and I don’t think a website for gluten-free singles is worthless. I’m just saying that having celiac disease doesn’t make me worthless, or worth something only to others who have it. I am not only a gluten-free single, you see; I am also an intelligent, attractive, talented, ambitious, (mostly) confident young woman well worth a compromise or two.

So…will I join GFS? I can’t say for sure I won’t (I’m curious). But if I do, I won’t give up on meeting folks offline, and I won’t abandon OkCupid, either. After all, with all those 93% matches to choose from, I’m bound to find the one sometime.

Note: I originally posted this on Kinja in response to a Jezebel post about Gluten Free Singles. I’ve now reposted it in full here.

Gluten-Free Singles online dating logo

What are your thoughts on dating gluten-free?

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The big 6

On Monday, July 29th, I intended to write about a momentous milestone in my life. But I wasn’t sure what to say that I haven’t said already before.

Finally, at the end of the day, feeling the need to mark the date, I went with, in the manner of all aspiring and procrastinating writers today, a Tweet: “As of today I’ve been gluten-free for 6 months. That calls for cake.”

If you’re into brevity, you might want to stop there. (But if that’s the case, I’m not sure why you put up with my blog in general.)

In response to my proclamation, probably picking up on the mention of cake, one Twitter buddy asked me if I ever cheat. We’ll come back to that one.

Another response came from Wendy of Palm Trees and Gluten Free, who wrote to congratulate me. She said, “It’s amazing how that date becomes as important as a birthday!”

I hadn’t thought of it that way, but it’s true. As on a birthday, I had that uneasy sense that I should feel different but don’t. Despite the importance we give to the occasion, a birthday usually doesn’t, in itself, represent a step forward. Sure, a few do grant you special privileges, like your 21st or 18th or 13th (if your parents truly didn’t allow PG-13 movies before then, that is). But by now, the majority of that kind of birthday is already behind me.

Instead, I’ve entered into that vast, undifferentiated stretch of road called adulthood, where birthdays are just markers of another year’s worth of life experience, thought of so rarely that I often can’t remember how old I am right away when asked. A birthday just means another year has passed. Not all at once, but second by second by second until 31,556,926 have fled.

Similarly, although six months’ worth of gluten freedom is a milestone of sorts, there was no reason to think that on the morning of July 29th I would wake up a changed person. Any change between the 28th and the 29th would have been so incremental as to be unremarkable. What’s important is the accumulation of improvements (however piddling) and experience over the course of those six months. Just like a birthday, this day meant no more than that I had made it a certain unknown percentage of the way through my gluten-free life.

As with a birthday, the amount of time the 29th marked seems simultaneously much shorter and much longer than it had really been. Shorter because, as has been observed again and again by writers more eloquent than I, it is in the nature of time to appear shorter when viewed backward than forward.

Longer because January 29th, the day of my official celiac diagnosis, wasn’t the first time I ditched wheat, barley, and rye. Almost three years before, I’d experimented with a diet low in pretty much everything thought to be tough on the gut (that’d be FODMAPs, and includes wheat, rye, and barley); I’d dabbled in “low-gluten” eating (which is basically a joke); and I’d done a whole-hog six-week gluten-free diet trial half a year before. Although it’s been six months of celiac-induced GFdom, gluten has been on my mind for longer.

Also because it’s been an intense six months. “I’m not sick because I’m stressed; I’m stressed because I’m sick”—how many times have I made that response? I still think it’s true, but it turns out not to be true that a diagnosis and prescription could take my stress away (hum that to the tune of the Berlin song). The certainty has eased some worries but added others: that the healing isn’t moving fast or far enough, that XY, or Z might have gluten in it, that I’m driving everyone crazy by talking about it all the time.

In honor of this date, I originally thought I might reveal all of my celiac symptoms on this blog (which you may or may not have noticed I’ve been quiet about, even as I bemoan our collective inability to talk about some of them). This wasn’t because you likely have any desire to know them but because I felt it would be terribly satisfying to cross off all those that had gone away.

But, after the sixth month, the truth is that few of what I believe to be celiac symptoms have actually resolved themselves. The gastro stuff is getting better, a little, but I still don’t know if the rest even are celiac symptoms. All I’ve gotten so far are “maybe”s and “we’ll see”s. To list what remains would be to jinx it.

So instead, dear readers, on this belated half-anniversary of my gluten-free rebirth, I leave you with only a promise: that six months, or twelve, or eighteen, or however many it takes from now, I will have crossed off more of that list. That I will not again succumb to the kind of complacency about my own well being that led to three years without a diagnosis. That I will beat this thing.

And—to answer my friend on Twitter—that no matter how long it takes, and how long it seems to take, under no circumstances and for no reason will I ever “cheat.”

Not even for cake.

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Gluten-Free Astrology: Leo (July 23 — August 22)

I’ve decided, after some deliberation, to skip Gluten-Free Leo. You’re full enough of yourselves as it is, and I’ve got better things to do. See ya next month for Virgo!

…Of course, I’m just kidding. You guys are great; no one could ever skip over you! You’re so fun! So lovable! So good looking! I just love to stroke that enormous ego—I mean, magnificent mane—of yours, my little lions. You’re even cuter when you purr.

Photo ©  Julie Egeland | Flickr

Photo © Julie Egeland | Flickr

Now that I’ve got your attention—and yes, flattery is the only foolproof way to gain the regal ear of a GF Leo—here’s what the constellations have to say about those glorious gluten-hating guts.

As a GF Leo, you have a big personality. You are magnetic, gregarious, bombastic, and extraordinarily charming—when you’re not making a huge pain of yourself with your equally extraordinary demands on the time and attention of everyone around you. Such demands strike you at least as reasonable, because you consider yourself the monarch of your own gluten-free kingdom (which, unlike in the Disney version, consists of all that the light touches and everything that’s left over).

As such, you don’t so much appreciate having your gluten-free needs met as expect it, regardless of venue, language barrier, amount (or absence) of advance notice, type of cuisine, and Yelp reviews. I mean, maybe they’ve glutened a peon or two, but they wouldn’t dare cross-contaminate your gluten-free sandwich, right? And, um, while they’re at it, would it kill them to refill your glass a little more often? You must have finished your Bard’s a full sixty seconds ago.

Photo © Luke Fritz | Flickr

Photo © Luke Fritz | Flickr

I don’t mean to be hard on you—I wouldn’t want to risk it, in fact. Like your Cancer horological neighbors, you’re pretty sensitive (to gluten and perceived slights alike)—but unlike the crab, you don’t hide your hurt away. Instead, your leonine pride, when crossed, erupts into a roaring, indignant wrath—although with appropriate groveling it dissipates quickly. (Upon accidental gluten consumption, GF Leos often display signs of the infamous “celiac rage,” which resolves itself most efficiently when a tender slave—uh, family member or friend—is there by their side to pet the pain away.)

GF Leo is associated with the back, the spine, and (naturally) the heart, so you may struggle with back pain or perhaps even scoliosis, which is thought by at least some researchers to be associated with celiac disease. Celiac disease has also been associated with greater risk of heart disease, although another study has found celiac disease to be linked with lower risk of heart disease. Rather like astrology, it’s all far too ambiguous and conflicting for you to care, even if you are affected by it.

GF Leos are much more concerned with the big picture and with taking control of it, whatever it may be. Though you aren’t exactly the type to work hard—you’re more into the playing part—you do love to lead and (I must admit) are often well suited to it. I hope that you use your interpersonal powers for good: GF Leos belong in politics pushing gluten-free labeling legislation through the maze of red tape, or at the head of the General Mills boardroom table figuring out how to make Cheerios gluten-free. Barring that, at the very least you should be getting out into your community and getting local business owners excited to provide gluten-free goods. Or maybe taking your GF agenda to the big screen or the stage, where your creativity and exuberance fit in perfectly. Much like your fellow famous GF Leos below, you live for the spotlight.

Bill Clinton

Bill Clinton

Bill Clinton—you know all about him from my Presidents Day post. Yes, he’s (mostly) gluten-free; yes, he’s a Leo (born August 19th); and YES, he’s charming. Just ask M…okay, okay, I suppose he’s done his time for that one.

Madonna

Madonna, born August 16th, 1958, is one of those GF celebs for whom the stars truly do seem perfect aligned. I mean, of course Madonna is a Leo. And of course Madonna has experimented with eating gluten-free (and had a joint gluten-free birthday party with her son, then turning ten). Did you ever doubt it?

Napoleon Bonaparte

Napoleon Bonaparte

Napoleon Bonaparte, born August 15th, 1769, was not a GF Leo. He liked bread baskets, fried foods, pastries, and pasta. When it came to food, he was more inclined to efficiency than anything so frivolous as texture or taste. (In all fairness, he did keep himself pretty busy with typical Leo pursuits.)However, you may be intrigued to know that scientists (tired of attempting to solve living people’s health problems) determined in 2007 that Napoleon died of gastric cancer, possibly triggered by Helicobacter pylori infection. Given that H pylori does not seem to be more prevalent in people with celiac disease than anyone else, and that gastric cancer is one of very few cancers that celiac disease doesn’t seem to be associated with, all of this means, for our purposes, absolutely nothing. That said, if Napoleon were living today with longterm unexplained pain such as he must have experienced with an advanced case of stomach cancer, he’d almost certainly be trying a gluten-free diet, don’t you think?

I know you want to keep hearing all about YOU, but that’s all for now, folks.

As always, the “information,” such as it is, in this post has been largely ripped off from The Only Astrology Book You’ll Ever Need, by Joanna Martine Woolfolk, which is in fact the only astrology book you’ll ever need (need here being a relative term).

See also: Aries, Taurus, Gemini, Cancer

Some of my closest friends are Leos, which means that every little joke I’ve made at their expense here is okay…right? If you’re a Leo whose pride this post has either hurt or soothed, let me know in the comments. And tell me what gluten-free passion projects you’ll be heading up this month, too.

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Riddikulus! Gluten, boggarts, and powerful magic

Are you sick of the Harry Potter references yet? No? Good, because there’s more where that’s coming from.

Recently, as I was cataloging the changes to my malleable psyche effected by my celiac diagnosis (nearly six months—that magical number—ago!), it occurred to me that were I to encounter a boggart in a dark alleyway, wardrobe, or Defense Against the Dark Arts classroom, it would probably now take on the form of a gigantic piece of wheat bread shedding crumbs as it staggered toward me on crusty legs. (Before, it definitely would’ve been bedbugs.)

WalkingBread_original

This is a sticker I received in a Breaking Up With Captain Crunch giveaway. Too good not to share.

If you, like me, devoted years of your child- or adulthood to reading and internalizing the Harry Potter series, you already know that the only charm to defeat a boggart—a shape-shifter that instinctively takes the form of its opponent’s greatest fear—is Riddikulus. The charm, as dear Professor Lupus put it, “is simple, yet it requires force of mind.” You must close your eyes, concentrate hard, and dream up a way to make fun of your greatest fear. Once the boggart has taken on its new and hilarious form, there’s just one thing you must do to vanquish it: laugh.

hp3_16

That walking bread? Give it a big toaster-burnt spot in the shape of a mustache. Or envision a gigantic toddler picking it up and gumming it to smithereens—with a bib to catch the crumbs, of course. Or speckle it with freezer burn, open up a big air hole in the middle, and imagine it as gluten-free bread from the nineties—which, from what I hear, was either very funny or very scary. Cross-contamination, schmoss-contamination, and boggart begone!

Photo © kaylacasey | Flickr

Photo © kaylacasey | Flickr

At the NYC Celebrate Celiac event this past Saturday (more details to come), I talked to a bunch of great people, and speaking about my blog helped me to put into words a mission statement I hadn’t concretely realized before: Gluten-free is for life, so you’d better start finding ways to laugh about it.

Whether you’re newly diagnosed and afraid you’ll never fit in or eat well again, or a seasoned g-freer who dreads the idea of a waiter chirping, “Whoo-oops, I thought you said vegan!,” chances are if you have celiac disease or non-celiac gluten sensitivity you’ve got a gluten-related boggart or two. It is my hope that my posts do less to feed your demons and more to dispel them, using the most magical weapon at our disposal: laughter.

I’m not saying being gluten-free is fun—I’m just saying it’s funny. It’s comical that I get twitchy about passing a dish of wheat noodles at the dinner table or standing too close to someone eating a bagel on the subway. It’s silly that I have to keep a sponge in my desk drawer and carry it to the sink to wash dishes at work. It’s hilarious whenever someone asks me, “What happens to you when you eat gluten?”

For me, every time the concept of Gluten-Free For Life starts to seem serious or scary, I can find a million reasons—starting with the word gluten itself—to laugh about it instead. I hope you feel the same way about celiac, or NCGS, or whatever else ails you. After all, as Dumbledore would certainly agree, to the well-organized mind, it all is but the next great adventure.

By the way, in case you were wondering: Yes, this blog is written pseudonymously by J. K. Rowling.

Tell me what your boggart would turn into, and how you’d defeat it. What’s the funniest thing to strike your gluten-free fancy recently?

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