Tag Archives: My Life with Food Allergies

Gluten-Related Disorders: Are You Aware?

Are you aware of celiac disease? Silly question, I know. But, of course, some people aren’t. Just yesterday, I “came out” as gluten-free to the high school student I’ve been tutoring since last fall, and she asked, “What’s gluten?”

High school students aren’t the only ones unaware of celiac disease—there are doctors who might have the same question, even if they’re less willing to ask it. For this reason, we have Celiac Awareness Month, beginning tomorrow.

Just to be contrary, though, I’m working on raising awareness of something else: gluten-related disorders. At Columbia’s symposium on Development of Therapies for Celiac Disease, “celiac disease” took pride of place in the conference’s name, even though many presentations focused instead on gluten sensitivity, gluten ataxia, and the possible involvement of gluten in some cases of schizophrenia, autism, and other neurological conditions. Quite a spectrum.

Why wasn’t the conference named “Development of Therapies for Gluten-Related Disorders”? There could be several reasons: 1) It was being put on by Columbia’s Celiac Disease Center, which also hasn’t made the leap to putting GRD in the title; 2) “Celiac disease” still has more cachet as a “real disease” with some doctors and researchers; and 3) The term “gluten-related disorders” is still too new for people to have heard it.

“New” is a relative term. Scientists have been recommending this umbrella term since 2012, yet many still haven’t caught on. As a gluten nerd, I receive Google Alerts on “celiac disease” and “gluten sensitivity.” Nearly every day, some newspaper, magazine, or website comes out with an article that uses outdated terms.

I’m a fan of “gluten-related disorders.” To learn why, check out my latest post on My Life with Food Allergies. 

And if you think the world needs awareness of all gluten-related disorders, please share.

 

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R-E-S-P-O-N-S-I-B-I-L-I-T-Y

Find out what it means to me…over at My Life With Food Allergies, where I just contributed my first post. If you haven’t heard yet, it’s a new website run by Living Without magazine. It features the work of gluten-free and food-allergic writers from around the blogosphere.

My post is about our rights and responsibilities as (reluctant) members of the food-restricted community. Do allergies or gluten sensitivity give us special responsibilities? And is one of those responsibilities to avoid making the rest of the community look bad? I touched on this topic way back when in this post about Dean McDermott, but now I’ve reopened the case. I hope you’ll check it out and share your own opinion on the matter.

While you’re there, take a peek at the other posts—there’s some great stuff on the site. It also has a nifty star ranking system, so you can objectively let me know how much you love the post in a single click.

Check out the post now HERE.

It’s the responsible thing to do.

picky eater who doesn't want to eat green beans

Do we have the right to remain “picky”? You tell me!
Photo © Clay Bitner | Flickr

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