“You don’t need this one, do you?”: A tale of the Gluten and Allergen Free Expo

Today I have a story for you about my spam filter.

I get a lot of email, so the little guy really gets put through his paces. (Yes, my spam filter is a little guy. He resides inside my Gmail apparatus, where he sorts desperately through the onslaught of slush, never recognized when he does something right but always excoriated for his errors…sort of like the stereotypical publishing intern.)

Email spam onslaught

Photo © Jean Pierre Gallot | Flickr
Looks like someone’s little guy has been on vacation.

If you’re wondering why I get so many emails, it’s because:

  1. I have a giveaway addiction. If you follow me on Twitter, you may already be aware of this. (If you don’t follow me on Twitter, join me! You’ll never miss a Kinnikinnick giveaway again.) This wouldn’t be a problem except that, to get extra entries, I sign up for all kinds of newsletters that I never have time to unsubscribe from, much less read.
  2. I love deals. So I always sign up when Express wants to email me updates on their end-of-season sales, and I can’t bring myself to quit Groupon Goods or Blackboard Eats (someday they’ll post a passcode for Risotteria). Plus, I’ve joined all the gluten-free-specific deals sites now, too. So many delicious, edible goodies to completely ignore.
  3. I’ve posted my email address on my site. Therefore, the bots are all over me.
  4. I’m very, very important. Thus, I receive important correspondence. I’m sure you guessed this one already.

Given all of the above, I can’t possibly be expected to sort through my emails myself. Gmail’s new “promotions” tab helps somewhat, but my spam filter must do the rest. And, occasionally, out of spite or exhaustion, he flubs it. He shows me something I never wanted to see, or he hides something I really, really wanted to see…such as the email welcoming me to attend the Gluten and Allergen Free Expo in Secaucus, NJ, as a blogger this September 7th and 8th.

No, little guy, no! What’s wrong with you?

I’ll sort him out later. But because of his hyperactivity, I didn’t find out until just a couple days ago that I get to go to the Expo to see, to taste, to learn, and to report back to all of you.

GFAF Expo Blogger Badge (Gluten Free and Allergen Free Expo, Secaucus, NJ)Still, I’ve managed to pack several weeks’ worth of excitement into those days. I’ve never been to a gluten-free expo before, and this one looks like it’ll be a blast. They’ve got an awesome lineup of classes (I’m looking forward to the presentation on turning glutenful recipes gluten-free by Chef Richard Coppedge, Jr.), and I know all of the vendors will be distributing samples and swag. (See above re: love of deals and giveaways.)

I’m sure my mind, strained as it is by my mountains of email, will be even more boggled by the array of gluten- and allergy-free choices available today. I feel lucky (-ish) to have been diagnosed at a time when the gluten-free market is exploding. And I feel lucky (-er) to be able to go and check some of them out in a couple of weeks.

Do you want to feel lucky, too? You can get in for free by volunteering, or you can buy tickets here (including special “early bird” tickets if you want to beat the crowds). And if you don’t live in the area, you can check for another location near you—they’ll be in Dallas in October.

And, of course, if you happen to be as into giveaways as I am, you’d better believe I’ll be doing one. Check back next week to enter, and after the event I’ll send a bundle of Expo surprises your way.

Want to be sure you don’t miss it? Ignore everything I said about clogged inboxes and sign up to follow me by email below! (Or, if Facebook or Twitter float your boat, I’d also love to see you there.)

Photo © Gluten Free Allergen Free Expo | Flickr

Photo © Gluten Free Allergen Free Expo | Flickr

Tell me your best stories of spam filters gone awry or bursting email inboxes. Will you be at the Expo, or have you been to a similar event? Which class looks best to you? Any vendors I should be absolutely sure to check out?

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“But you can still have beer, right?” and other stupid questions

This is post #2 in Althea’s series of guest posts. If you haven’t yet, check out the first post here. You’ll laugh, you’ll cry. And not only because celiac disease is linked to mood disorders.

Lots of people really suffer from celiac disease, and they don’t get the recognition they deserve. But sympathy is even harder to come by when you have a disease that doesn’t make you sick. No one understands why I even know I have celiac, let alone why I can’t go out to eat anymore. So I get all kinds of annoying questions like the above—salt in the wounds of my beer-deprived soul.

I’m a soon-to-be success story, I want to tell them. The poster child for early screening! If you found a small tumor, you wouldn’t wait to treat it until it was causing you to have symptoms, would you? Same idea!

But still, they say (or, at least, their bemused expressions seem to), you’re not really sick. Surely, a crumb or two couldn’t hurt you. Maybe you won’t have to worry about cross-contamination like your poor sister.

For most celiacs, the suggestion that “a crumb or two couldn’t hurt you” is cringe-worthy at best (and smack-someone-with-a-cast-iron-skillet-worthy at worst). And in this regard I’m your typical celiac. I mean, 20 ppm is not a lot! And what’s more, I have no idea what’s going on in my body, or why, so I really wish everyone would stop acting like I have all the answers. Maybe a crumb or two would hurt me a lot, and I wouldn’t even know it.

But that’s the thing. I have no idea what’s going on in my body. So I wonder, too. After all, it’s conceivable that I’m less sensitive to gluten than some, and that’s why my symptoms are “subclinical.” On the other hand, it’s just as plausible that my immune system is as responsive to 20+ ppm of gluten as the next celiac’s, but it just hasn’t been attacking me for long enough to have destroyed my villi. I like to think that my villi are particularly resilient, holding off those barbarous T cells with some home-front war effort, like a Victory Garden.

This is a section of small intestine showing the villi, but it could just as easily be an aerial shot of some home-grown tomato patches and heads of lettuce. Photo © wellcome images | Flickr

This is a section of small intestine showing the villi, but it could just as easily be an aerial shot of some home-grown tomato patches and heads of lettuce.

When you start imagining your intestinal lining growing cucumbers, you know you’ve progressed from confusion to delirium. To remedy this, I turned to Google, but even He doesn’t fully understand. Classifications abound: latent, silent, oligosymptomatic, atypical, classical, refractory types I and II. But as far as I can tell, doctors pretty much leave it up to patients in my situation to decide whether and to what extent to go gluten-free.

Turns out, nobody knows anything. Are we surprised, dear readers?

This baby is NOT surprised.
Photo © Jordan Brock | Flickr

And now it’s your turn. Were any of you diagnosed with latent or silent celiac, or do you know someone who was? Does anyone know if latent/silent celiacs can get away with a crumb, or am I in denial?

What would you do in my situation? And can anyone tell me what’s going on in my body and why?!

Maybe I won’t have to worry about cross-contamination like my poor sister. And that would be, for lack of a better word, awesome (sorry, Molly). Hell, maybe I can have a whole sandwich now and then. (Okay, okay…but an itty-bitty garlic knot? Please?!)

[Editor’s note: No.]

For now, I am 100% gluten-free. I even started a new tube of toothpaste. I’m hoping to start seeing some health improvements, maybe some unexpected ones. I’m really hoping that my insomnia, anxiety, and ditziness—I mean, brain fog—are symptoms, not personality traits.

But I didn’t go GF right away. In fact, I created what I call a gluten bucket list. Come back next week and read about my quest to find—and eat—delicious things my lips will never touch again.

Sprue Stories: The Disney Edition

We already know how Beauty and the Beast would go if Belle had celiac disease, but what about all the other Disney characters? We may not have a food-allergic or intolerant Disney princess yet, but that doesn’t mean we can’t pretend. After all, as Walt would say, “If you can dream it, you can do it.” As long as “it” isn’t “eat gluten.”

Check out my versions of the classics, then tell me yours!

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Simba just can’t wait to be king, when he can outlaw offering “just a bite” to people with celiac disease and, for that matter, ban gluten entirely. He’s got it all planned out: “No one sayin’ try this, no one sayin’ eat here; no one bakin’ rye bread, no one brewin’ wheat beer!” Oh, he just can’t wait to be king.

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The Lady didn’t find that shared strand of spaghetti quite so romantic when, an hour later, her typical glutening symptoms started up in full force. “I should have known it wasn’t really made of quinoa,” she raged at the repentant Tramp. “Footloose and collar-free, my tail.” She never trusted a date to pick the restaurant ever again.

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When Gaston was a lad he ate four dozen eggs every morning to help him get large. When this admittedly excessive regimen failed to produce the desired result, his doctor determined he was in fact egg intolerant. So now that he’s grown, he eats five dozen bowls of oatmeal instead, and it seems to be working for him because he’s roughly the size of a barge.

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Ursula, that old sea witch, knew just what she was doing when she struck her bargain with the mermaid. “I’ll make you human for three days,” she crooned, “and if the prince gives you a kiss, you’ll be human forever. If not, you’ll belong to me. I ask just one thing in exchange…your gluten.” Persuaded that giving up gluten for three days couldn’t be that hard, Ariel agreed. But when she found that Ursula’s minions were plying the prince with the bread and cupcakes she’d forsaken, Ariel realized the catch: if she kissed the gluten-eating prince, she wouldn’t herself be gluten-free. When the sun set on the third day with her end of the bargain unfulfilled, Ariel lost her legs, her prince, and her freedom—but at least she regained her gluten.

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Aladdin finally realized that those loaves of bread he kept stealing from the market weren’t doing him any good. And not just in the criminal record department, if you know what I mean. But when he asked his magical friend for help, Genie wrung his big blue hands and said, “Sorry, pal, even I can’t help you with that. Celiac disease is incurable, you know.”

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Cruella was gung-ho about collecting the Dalmatians’ coats for her own—until their fur began falling out, that is. Then she lost interest and set them free. Little did she know it was caused by malnutrition from gluten sensitivity and could have been easily solved by switching kibble brands. When the pups found their way home—all 101 of them—their story was picked up by news and talk shows across the country. A successful online fundraising and awareness campaign paid for their new, more expensive dog food and, as a bonus, sought out and brought to justice Ms. de Vil, who had since moved on to terrorizing animals with better functioning immune systems.

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None of those sorry excuses for men could manage to shimmy up the climbing pole, much less fight off a horde of Huns. But when Mulan cut wheat out of her diet, her brittle bones recovered and her energy soared—as did she, right up to the top of that pole. These days she’s such a changed man—er, woman—that when she looks in the mirror she still can’t recognize her reflection.

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Once the celiac disease epidemic had reached epic proportions, human beings fled the planet, leaving behind only a few robots to scour away every trace of wheat, barley, and rye that remained. They planned to return one day, but with their newly healed digestive systems absorbing nutrients aplenty, they quickly became fat and complacent. And why risk the cross-contamination? Years later, just one lonely robot remains, diligently uprooting stalks of wheat. But the real story begins when Wall-E starts exhibiting signs of gluten sensitivity, too…

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Do you have a new ending for Wall-E or a gluten-free or food-allergy/intolerance spin on The Jungle Book, Ratatouille, or another one? Who’s your favorite Disney hero(ine)/villain? Let me know in the comments!

Photo © Brian Jackson | Flickr

Where (some) dreams come true
Photo © Brian Jackson | Flickr

Pssssst…If you liked this post, check out the fairy tale edition, too.

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I’m gluten-free. I’m single. Do I need Gluten Free Singles?

Gluten Free Singles dating site

I am a gluten-free single. I have celiac disease, so I’ll never eat gluten again. I do still want to date…but what does that have to do with gluten?

Judging from the response to the newly launched dating site Gluten Free Singles (hereafter GFS), the majority opinion is “nothing.” Reactions to the site from the non-gluten-free have ranged from bemused to dismissive to downright derisive.

But the premise isn’t really all that crazy. Here’s why:

1) Eating gluten-free (really, truly, not-continuing-to-damage-your-body-through-lax-adherence gluten-free) is hard. Lots of packaged foods are off the table, and it’s recommended not to eat out at allanywhere, until your symptoms have resolved, which can take six months to two years. Even then, most places boasting “gluten-free” menu items aren’t actually trustworthy. One bread crumb or a few drops of soy sauce cause harm, and most restaurant kitchens are too cramped and frenetic to prevent such contamination. Eating at someone else’s house? Forget about it.

2) Dating someone who isn’t gluten-free, if you’re gluten-free, is really hard. Not only because the person might not fully get it or even believe you. And not only because our dating culture is so intertwined with food—think dinner dates, ice cream cones on the beach, romantic home-cooked meals in. It’s also because you, as a gluten-free person, might not want to hold hands with someone who was just holding a sandwich, in case you forget and touch your own food afterwards. Or you may not want to tongue-kiss someone who drinks beer, because research suggests that food particles linger in saliva for hours in high enough quantities to trigger reactions. And, eventually, if you start thinking about moving in together, you won’t want your squeeze to move a bunch of gluten into your kitchen. Cross-contamination city.

3) Convincing someone who doesn’t need to eat gluten-free to eat gluten-free just so you can be together is really really hard. Because, let’s face it, eating gluten-free kinda sucks.

Given all of this, when I was diagnosed in January, my usual priorities—from intellect to appearance to love of board games—shrank to nothing compared to the need for a significant other to be either gluten-free or super supportive. (Here’s a flowchart demonstration.)

Since GFS didn’t then exist, I set out to hack OkCupid into a gluten-free dating site of my own. Under “stats,” you can label your diet vegan or kosher, but not gluten-free (an unfortunate oversight), so I couldn’t search that way. Instead, I dropped my usual criteria (“single,” “needs photo,” “minimum height,” even “male”—because if I’m going to make this work, I’ll need to be flexible) and searched by keyword. Show me, I asked, anyone who has mentioned “gluten” or “celiac” in their profile. ANYONE.

At that point, I learned why dating, even with gluten-free boys, is still hard:

1) The options, even in a metro area, are scant. After weeding out the profiles that claimed, “I love anything with gluten” or, perhaps worse, “I’m gluten-light,” I was left with…not many.

2) Not every gluten-free boy likes me. Of the handful I messaged, only half responded. Huh, I thought. Don’t they know they need me?

3) I don’t like every gluten-free boy. I learned this after meeting up with two of them. They were nice enough, but it turns out there’s more to compatibility than gluten-free.

I decided to put the whole thing on ice and focus more on fixing my own intestines than on finding a matching set. I learned my way around the diet, hunted down new recipes, started a blog. As for dating? Let it be, I thought. It’ll happen.

Six months later, I’m still single. You see? Gluten-free dating is hard.

Enter GFS. The solution, right? Well…maybe. It levels the playing field, sort of. Everyone is gluten-free, so you can concentrate on things such as, say, your sexual orientation. If the site manages to amass a large enough pool of daters, it could make dating more convenient.

At first glance, such convenience is appealing. But on further examination, it’s less so. In the founders’ words, this is a network in which “you never have to feel alone, awkward, or a burden because you are gluten-free.” This implies that around “normal” people, you do feel this way—but that shouldn’t be the case.

Of course, shared qualities and logistics play a role in every relationship. Some long distance relationships fizzle, and some couples whose lifestyles don’t mesh call it quits. But, says the idealist in me, those aren’t the relationships I want. I want a relationship in which we do compromise—even in big ways—and do it well, without breeding resentment.

My family and close friends, for example, have gone above and beyond in accommodating my gluten-free diet. My parents bought new cutting boards, bowls, and cooking utensils when I visited, because those things can harbor gluten. A friend brought gluten-free groceries to my “safe” kitchen and cooked for me there. My sister agreed not to eat gluten at home when we moved in together (and then found out she had celiac disease herself—but that’s a different story).

I don’t take their consideration for granted, but if these loved ones can do it, can’t a lover do it, too?

To join GFS seems almost to answer that with “no”—to suggest that a guy wouldn’t find me worth compromising for. I don’t want to send that message to a potential date, and I don’t want to date someone who feels that way about himself, either.

My dad has always said that true love is waking up to make coffee every day even if you don’t drink it yourself. In an admittedly larger way, that’s what I want for myself. I wouldn’t say no to a gluten-free boy (or hell, who knows, a girl), but only if we also fit in other ways. Should that match not appear, I’m sure I can find love with a non-gluten-free boy, one who will look out for me as loving people do—that daily cuppa, if you will.

I’m not saying there’s nothing appealing in the idea of meeting someone who shares my lifestyle, and I don’t think a website for gluten-free singles is worthless. I’m just saying that having celiac disease doesn’t make me worthless, or worth something only to others who have it. I am not only a gluten-free single, you see; I am also an intelligent, attractive, talented, ambitious, (mostly) confident young woman well worth a compromise or two.

So…will I join GFS? I can’t say for sure I won’t (I’m curious). But if I do, I won’t give up on meeting folks offline, and I won’t abandon OkCupid, either. After all, with all those 93% matches to choose from, I’m bound to find the one sometime.

Note: I originally posted this on Kinja in response to a Jezebel post about Gluten Free Singles. I’ve now reposted it in full here.

Gluten-Free Singles online dating logo

What are your thoughts on dating gluten-free?

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