Category Archives: Sprue Stories

Sprue stories: The Bedbug Edition

Photo © Bloody Marty

Photo © Bloody Marty

Last summer, I had a bit of a scare. As I lay in bed one night, my leg became oddly . . . itchy. I scratched, but the itch returned. My hand crept down again and again, even though I told myself I was making it worse. Finally, I yanked off the covers and took a peek. There, on my leg—on MY leg—were three small bumps, all in a row.

My heart seized.

Google, which I raced to check, confirmed that the three-bump pattern was linked to bedbugs. I stripped my sheets, flipped over my mattress, and found, around the edges, small black bits that I was certain resembled the Google images of bug-infested beds.

Google also told me it was not recommended to vacate the premises or sleep in a different room, which risks spreading an infestation. In a rare instance of disobedience to Google, I refused to return to my room. Instead, I sat huddled and horror-stricken in my dining room at my computer late into the night.

The following days were bleak. I’m not proud to say I threw out a whole lot of things, washed and dried everything else several times and then kept it all in trash bags, getting dressed at my front door because I was so scared I might spread the bugs. I dragged my roommate out to buy an expensive vacuum from Manhattan’s only 24-hour hardware store, I thought about nothing but bedbugs, I told several people we had bedbugs, and I even canceled a visit to Buffalo to see my sister because—again—I feared spreading the bugs. I slept little and cried a lot. In short, I completely lost it.

And then we didn’t have bedbugs after all. The inspector came, looked at the “samples” I’d been collecting, looked at my mattress, and laughed. The “infestation” on my mattress was dust, collected over a year of not vacuuming the mattress. The samples were of, well, baby beetles and cockroaches, which is still gross but better than the alternative. The panic I’d undergone was just that: panic. So . . . phew. Embarrassing, but . . . phew.

Good things that came out of my bedbug scare include:

– I threw out some old clothes that I had no business wearing in public anyway.
– I bought a vacuum.
– I learned a valuable lesson about finding out before freaking out.

I also learned a lot about bedbugs. Now that I’ve learned a lot about gluten, too, I want to talk about how much they have in common.

First, a few differences.

Bedbugs are not found in wheat, rye, barley, and oats (though look out for grain weevils).
– Gluten cannot move around of its own volition (though flour particles can drift around in the air for a while, according to some sources).
– Bedbugs do not give bread its characteristic elasticity and stretch.
– Gluten does not suck your blood.

On to the fun part: the similarities.

Both are very small.

But it’s a myth that bedbugs are microscopic. They are more like the size of that single crumb that can take someone with severe gluten sensitivity out of action for days or weeks.

Both affect some people and not others.

Bedbugs are picky creatures. Monogamous, even. A couple can sleep together in the same bed every night and the bugs might attack one of them but not the other. Relatedly, bedbugs cause reactions in some people and not in others, and the range of response severity is wide (some rare people are even allergic to the point of anaphylaxis). Gluten, too, affects some people and not others; a couple might eat the same pasta dinner every night and the gluten might destroy one set of intestines but not the other. And for those lucky affected individuals, symptoms range from minimal to life-threatening.

Both disproportionately affect travelers.

Bedbugs can be spread through staying in hotel rooms and taking buses and other modes of transit, where they are dislodged from luggage or traveler’s clothing and hide out awaiting you. Brooklyn writer John Hodgman claims that the first thing he does upon returning home after a trip is strip naked and wash the clothes off his back—and that this is what every careful human should do to avoid bedbugs. Similarly, as we all know, traveling is difficult for those with gluten issues. You need to pack safe food to bring with you or locate gluten-free dining establishments, or else risk encountering gluten along the way. There has been some concern about the bedbug epidemic’s effect on New York City tourism, and in my opinion the small number of gluten-free-only establishments per capita here in the Big Apple should scare away tourists, too.

Both can cause an itchy, painful skin rash.

bed-bug-bites

Rash caused by bedbug bites

Dermatitis herpetiformis (triggered by gluten)

Dermatitis herpetiformis (triggered by gluten)

Yes, I chose less severe images than I could have.

Both hide in cracks and crevices.

According to the University of Kentuckybedbugs camp out “along and under the edge of wall-to-wall carpeting, especially behind beds and sofas; cracks in wood molding; ceiling-wall junctures; behind wall-mounted pictures, mirrors, outlets and switch plates; under loose wallpaper; clothing and clutter within closets; and inside clocks, phones, televisions and smoke detectors.” According to Jane Anderson at About.comgluten hides in the crevices of your toaster, scratches in nonstick pans, pores of cast iron pans, scrapes in cutting boards, and minuscule cracks in spatulas, spoons, and rolling pins. And yes, people do have concerns that both gluten and bed bugs are in your computer (bugs in the warm hard-drive-y area, gluten in the keyboard and mouse, and both, of course, swarming the internets).

Both attract online sensationalizing.

I discovered a whole world I never knew existed (and sort of wish I still didn’t): bedbugger forums. These are places where the afflicted gather to share horror stories about the extent of their infestation, botched exterminations, and quixotic home control methods. They are zones of intense fear and fear-mongering, stoked to ever greater levels, and they are not a good way to avoid the whole stress thing. Your life is over!, many of the posters trumpet. You can run, but you’ll take them with you! Buy a PackTite or all is lost! Similarly, although celiac disease forums often feature reasonable, supportive posts, they also have plenty of hopelessness to go around. If you want to send yourself into a downward spiral of obsessing over your illness, you can manage it by poking around celiac.com. Actually, a very thoughtful and perceptive post on one of those bedbugger forums made the connection quite well:

“I just wanted to say that I have a chronic, potentially debilitating illness and when I was first diagnosed I went to some internet forums and after reading story after story, thought my life was over. But it turns out most people with this illness actually end up living full and painless lives (these days, anyway) but these were not the people posting on the forums! . . . people come together in these support forums when they are not having success solving their problem, or when they need understanding or advice, not when the problem is under control and they aren’t thinking about it anymore. So we are not getting an accurate picture of success and failure here.”

Both also attract media sensationalizing.*

Bedbugs are everywhere! Bedbugs are spreading! Bedbugs are in your local public library! Bedbugs are (ironically) in the Health Department! Bedbugs are in your lingerie! Bedbugs are at home, at work, and at school! Similarly, gluten is everywhere! 50 percent of Americans are sensitive to gluten! Gluten is at home, at work, and at school! Gluten is in envelopes (maybe)! Gluten is in ketchup (maybe)! Gluten is in imitation crab (well, yes, but it’s gross anyway)! Gluten may not be in your lingerie but I wouldn’t count on it! *Some of this is sensationalizing; some of it is just true. But it’s comforting to call it sensationalizing.

Both have the capacity to drive you completely and utterly bonkers. . .

Especially if you’re me. Both are linked to stress, anxiety, and depression. The mechanisms are not completely clear from research in either case, but from a common-sense standpoint, it makes perfect sense. Bedbugs and gluten cause physical pain and are hard to eradicate, a bit disturbing, and potentially thought-consuming. Having them around is stressful? Um, obviously. It’s easy to become anxious that either might be present at any time and in any place, especially with all the hype surrounding both.

. . . but not if you deal with the problem correctly, in about the same way.

Step 1 is to make sure you actually have a problem (by inspection or by diagnosis).
Step 2 is to do your research carefully, not believing everything Google tells you.
Step 3 is to learn to love cleaning.
Step 4 is to put into practice all the necessary cautionary measures you can.
Step 5 is to be patient.
– And Step 6, though really you should be doing this all along if you can, is, as in many things, to stay calm and avoid catastrophizing. Life will go on, even if you do come across bedbugs or gluten.

Remember: Bedbugs bite, gluten bites, but don’t let your life bite.

Now that I’ve finished grossing you out, are there any similarities or differences I’m missing? Have you had any experience with bedbugs? If so, I’m so sorry! Any other tips for handling it?

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Be our guest…Then again, maybe not.

be-our-guest
Be our guest, be our guest, put our service to the test!

be-our-guest-food
Tie your napkin round your neck, cherie, and we—
What’s that you say?

belle-menu
Celiac disease? Tu ne peux pas manger quoi?
Cook your food on a clean—sacre bleu! No substitutions, mademoiselle!

Belle-Crying-belle-13096032-960-540


P.S. I know, I know, many restaurants—even in France—are pretty good about handling special dietary requests. But Beauty and the Beast was set sometime in the eighteenth century, after all. And judging from a few recent posts on the subject, the behavior of some establishments toward diet-restricted guests is still, like Gaston’s, positively primeval. Do you agree?

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Sprue Histories: The Presidents Edition

There’s an interesting practice known as baptism by proxy, in which the Church of Latter-Day Saints claims historical figures for the Mormon faith by baptizing living stand-ins. I find this impulse perfectly understandable, albeit morbid and somewhat disrespectful. We all want to believe that the people we admire are sorta, kinda, just like us—and if they’re already dead, who’s to stop us from claiming them for ourselves?

In honor of Presidents Day, I thought I’d perform a little biopsy by proxy, a related practice popular among certain sects of Latter-Day Celiacs. Check it out:

[John F.] Kennedy’s Irish heritage, long duration of gastrointestinal complaints (since childhood), diagnosis of irritable bowel syndrome and migraine, presence of severe osteoporosis, and the development of Addison’s disease all lead to a presumptive diagnosis of celiac disease. (Peter H. R. Green, MD)

Although it’s hard to believe that such a prominent figure could’ve managed to go undiagnosed, Dr. Green suggests that steroids might have suppressed Kennedy’s intestinal inflammation and contributed to a misdiagnosis. Good enough for me, Pete! It’s official, JFK was one of us. If he were alive today, I’m sure he’d be right there with his fellow Bostonians trying out the new GF muffins at Dunkin Donuts. It’s humbling, honestly—sure, it took a billion years for the doctors to figure me out, but they never got it right for him, and he was the president of the United States.

Okay, so, that article was news to me, but it’s a few years old, so maybe it wasn’t new to you. To add some real value to this post, I’ve taken the liberty of bringing a few other heads of our state into the celiac fold. As it turns out, the Oval Office attracts a gluten-fearing bunch. Here’s some presidential advice and support for you:

“Nothing short of gluten-independence, it appears to me, can possibly do. A peace on other terms would, if I may be allowed the expression, be a peace of war.”—George Washington
“Baking establishments are more dangerous than standing armies.”—Thomas Jefferson
“If we falter and destroy ourselves, it will be because we lost our gluten-freedoms.”—Abraham Lincoln
“The world must be made safe for the gluten-free.”—Woodrow Wilson
“The only thing we have to fear is fear itself. Wait, and gluten. That stuff is in everything.”—Franklin D. Roosevelt
“History does not long entrust the care of gluten-freedom to the weak or the timid.”—Dwight D. Eisenhower
“Gluten is as violent as a mugger, as frightening as an armed robber and as deadly as a hit man.”—Ronald Reagan
“I misunderestimated gluten.”—George W. Bush
“Why can’t I just eat my waffle?”—Barack Obama(By the way, Mr. President, if you make it with Udi’s, then yes. you. can.)
  This one’s too easy. Bill Clinton actually does avoid gluten. For real.

Happy President’s Day. Enjoy your day off, and maybe a nice slice of coconut-flour cake in honor of Washington’s birthday. What do you think—is Dr. Green’s case convincing? And which will come first, a female president or a celiac-diagnosed president?

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Sprue Stories: The Fairy-Tale Edition

This comic in the New Yorker got me thinking about how celiac/gluten intolerance and food allergies do sometimes take the “magic” out of things. Romance and mystique are good and all, but some of us need a little more certainty in our happily ever afters. (File that one under “sad but sprue.”) I was inspired to adapt a few fairy tales into more relatable bedtime stories for me and my celiac-having friends.

Sleeping Beauty

After a run-in with an offended fairy and an enchanted spindle, Sleeping Beauty slept for a hundred years in a thorn-covered castle. When a handsome prince broke through the brambles to find her, he fell in love instantly and awoke her with a kiss. Unfortunately, the princess had celiac disease, and the prince had just quaffed an entire flagon of ale to psych himself up. When she came to, she was so ill from their kiss that she never forgave him. “Eternal sleep,” she moaned, clutching her abdomen, “would at least have been painless.”

Jack & the Beanstalk

Having ditched gluten years before on doctor’s orders, and given up lactose when his cow stopped producing milk, Jack was finally free of the brain fog that had plagued him all his life. Plus, he knew the cost of a sack of rice flour. When a strange old man tried to bargain for his cow, Jack was far too clearheaded to believe in his “magic beans.” He sidestepped the man, sold Bessie at market price, and lived with his mother penniless but sensible the rest of his days.

Goldilocks & the Three Bears

A hungry little girl once came across an unlocked cottage where three bowls of porridge sat on the table: one hot, one cold, one warm. The warm bowl looked just right, but she couldn’t be sure that the cook had used gluten-free oats, and she didn’t want to risk getting glutened alone in the woods. And besides, she remembered how annoyed she always felt when people ate her expensive gluten-free snacks without asking first. So she went on her way, and the three bears to whom the cottage belonged smiled and waved as they crossed her path in the woods.

The Frog-Prince

The princess was not about to kiss that slimy frog, no matter what he promised. It’s not that she didn’t believe he was a prince; she just knew he was lying about not eating the breadcrumbs children threw into the pond for him. “You may be a prince,” she said, “but if you’re not going to take my health seriously, you’re not charming enough for me.”

Rumpelstiltskin

When the miller told the king his daughter could spin straw into gold, he never expected he’d have to prove it. Sadly for them both, the king locked the girl in a dungeon and commanded her to spin for her life. After a time, a small man appeared and asked the girl why she was crying. When she told him her tale, he shook his head and said, “Alas, love, I would help, but I got out of that line of work years ago. The straw is always cross-contaminated and it’s just not worth it.” He bade the miller’s daughter good night, and that’s pretty much the end of that story.

The Gingerbread Man

You tell me this one!

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