Breaking news: blogger seeks “likes” on Facebook

Hey all, just a quick update today: Based on a Sprue Story is now on Facebook! Click here to like my page and get updates on your very own news feed.

All of my old posts have been added, so you can scroll through and see them all thumbnail-style (and share them with everyone you know, of course). It’s an easy way to follow, especially for those of you who were so cruelly abandoned by Google Reader.

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Plus, check out yesterday’s post and share a story about grocery shopping now that you’ve had some time to think about it. There are some great ones there already.

Hope to see your smiling thumbs-upping faces soon—and wishing you a great Thursday.

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Tell me a sprue story about…grocery shopping

In the wake of the FDA finally announcing gluten-free labeling rules (read about it here, here, and pretty much everywhere), I’ve been thinking about grocery shopping even more than usual, if that’s possible.

In the spirit of celebration, I’d love if you would share YOUR stories about gluten-free grocery shopping—make them sad, funny, infuriating, short, long, general, specific, anything you want…as long as they’re “sprue.”

Gluten-free aisle

Photo © Memphis CVB | Flickr

Here’s mine.

For me, shopping with celiac in tow is only slightly more stressful than it used to be (and still likely not as stressful as having, say, a toddler in tow—or with both, a plight with which some of you are familiar).

That’s because even before I went gluten-free, my grocery shopping trips were already interminable processes of pausing, considering, picking up, rejecting, and repeating. I blame this on:

a) calorie consciousness, which adds time spent reading labels and doing little calculations like, “X calories times Y servings per equals WTF HOW CAN THERE BE THAT MANY IN THIS TINY BAG?,” followed by hunting for more reasonable choices;

b) money consciousness, which adds time spent chewing over this option versus that option and more little calculations like, “X dollars divided by Y servings equals WTF HOW CAN IT COST THAT MUCH FOR THIS TINY BAG?,” followed by hunting for sale items (something that now takes less time, because it’s simple: the gluten-free items are NEVER on sale);

c) lack of spatial awareness or visual memory (I can’t see images in my mind, perhaps due to mild dyscalculia, which would also explain why the aforementioned calculations always take me so long), which adds time spent wandering slooooowly down aisles looking at each item and hoping that one of them will magically turn out to be the thing I came in for, which I sort of thought I’d seen before somewhere, but in which aisle or store I couldn’t say;

d) vegetarianism, which adds time spent scanning ingredients lists for gelatin and trying to remember which cheese brands use microbial rennet (and trying to nail down once and for all my viewpoint on animal-derived rennet—a philosophical dilemma that also, incidentally, adds time to my shopping trips);

and I could go on.

In other words, with or without gluten, I suck at shopping. With so many hem- and haw-worthy items in mind, I dawdle my way through the aisles. When I finally emerge from a Whole Foods or a Fairway or a TJ’s, I feel a bit like a mortal departing the fairy underworld, leaving behind halls bursting with enticing and enchanting food, and having no idea how much time has passed in the outside world.

I lug my bags home in a daze and often find, as I sort through the treasure, that in a sudden panic after too much time spent deliberating I managed to buy several items I do not need, will never use, or cannot use (such as, recently, those two boxes of granola bars whose first ingredient—oats, even gluten-free—is one I do not eat). Perhaps I do this unconsciously to form a link between myself and those magical realms; I must return, you see, to make the return.

Despite all this, and even though nobody likes a slow shopper during the afterwork rush hour, I always make it through with my sanity intact. And even after a rough trip when nothing is certified and everything is overpriced, I don’t feel discouraged for long.

Because…I must admit…I like grocery shopping. I like discovering interesting new ingredients, I appreciate marketing slogans and packaging strategies, I enjoy checking items off the shopping list, I indulge in people- and cart-watching, I sniff the bottoms of pineapples like a pro, I savor the sudden chill of the freezer aisle and thrill to the sight of a good bargain, and, above all, I know it’s all in service of a great cause: delicious gluten-free, vegetarian, (mostly) thrifty, nutritious, home-cooked meals.

Worth every second.

Don’t forget to share your story about gluten-free grocery shopping for you or others. Alternatively, tell me how you feel about the new labeling rules. Are they everything you hoped they’d be? (Links to your own blog posts on the subject are, of course, welcome.)

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SISTER (CELI)ACT: two sisters, one diagnosis, zero gluten

This is the first of three guest posts by my sister Althea. (At least, she thinks it will only be three posts…) Enjoy!

Faithful followers of Based on a Sprue Story may remember me as the benevolent sister who agreed to forgo all glutenous foodstuffs (as well as anything that may have ever come into contact with a glutenous foodstuff) in her own home, out of respect for Molly’s dietary needs (and neuroses). What a thoughtful, altruistic sister, you likely thought. That’s what I thought, too, when we first made plans to get an apartment together.

There must be an Udi’s version of this by now, right?
Photo © Tamara Evans | Flickr

Just days before boarding the trusty old Lucky Star (may she rest in peace), however, I learned that I also have celiac. But there’s a twist. (No, not one of those donut twists, or the twist in your stomach, dear reader, at the mere thought of one of those donut twists—just a twist in the story.)

The twist is, I did not suffer for years from mysterious symptoms before getting this diagnosis. Sure, I had had some mild GI trouble from time to time over the past year or so, but everyone gets constipated once in a while, right? I was probably just eating too fast. Or drinking too much coffee. Not enough coffee? (Do yourself a favor and click on that last link—but only after you’ve finished reading this post.)

Me chopping parsley (a naturally gluten-free food) in preparation for our housewarming party (details to come).

In fact, I bet I would have ignored the issue entirely if I didn’t have such a good little awareness-raiser for a sister. Said sister urged me to get tested for the sprue (which, as my case illustrates, all  immediate relatives of a celiac should do, regardless of symptoms). I asked my school’s health center to do it, but the nurse practitioner there said it wasn’t worth it; “It’s not like you’re running to the bathroom every time you eat a sandwich,” she said. (Well, no, but that’s not really how it works, so… but, okay.)

In the end, I got the blood test when I was home briefly after graduation, and my antibody levels were off the charts. I haven’t had a biopsy yet, but a recent paper concluded that blood test results are strong enough evidence of celiac that a biopsy isn’t necessary.

So, apparently, I have celiac disease just as much as Molly does, which means I need to eliminate gluten from my diet just as completely as she does. Or do I?

In my next post, I’ll delve into the questions that get asked of someone who only sort of has a disease that confounds people enough as it is. Stay tuned!

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The big 6

On Monday, July 29th, I intended to write about a momentous milestone in my life. But I wasn’t sure what to say that I haven’t said already before.

Finally, at the end of the day, feeling the need to mark the date, I went with, in the manner of all aspiring and procrastinating writers today, a Tweet: “As of today I’ve been gluten-free for 6 months. That calls for cake.”

If you’re into brevity, you might want to stop there. (But if that’s the case, I’m not sure why you put up with my blog in general.)

In response to my proclamation, probably picking up on the mention of cake, one Twitter buddy asked me if I ever cheat. We’ll come back to that one.

Another response came from Wendy of Palm Trees and Gluten Free, who wrote to congratulate me. She said, “It’s amazing how that date becomes as important as a birthday!”

I hadn’t thought of it that way, but it’s true. As on a birthday, I had that uneasy sense that I should feel different but don’t. Despite the importance we give to the occasion, a birthday usually doesn’t, in itself, represent a step forward. Sure, a few do grant you special privileges, like your 21st or 18th or 13th (if your parents truly didn’t allow PG-13 movies before then, that is). But by now, the majority of that kind of birthday is already behind me.

Instead, I’ve entered into that vast, undifferentiated stretch of road called adulthood, where birthdays are just markers of another year’s worth of life experience, thought of so rarely that I often can’t remember how old I am right away when asked. A birthday just means another year has passed. Not all at once, but second by second by second until 31,556,926 have fled.

Similarly, although six months’ worth of gluten freedom is a milestone of sorts, there was no reason to think that on the morning of July 29th I would wake up a changed person. Any change between the 28th and the 29th would have been so incremental as to be unremarkable. What’s important is the accumulation of improvements (however piddling) and experience over the course of those six months. Just like a birthday, this day meant no more than that I had made it a certain unknown percentage of the way through my gluten-free life.

As with a birthday, the amount of time the 29th marked seems simultaneously much shorter and much longer than it had really been. Shorter because, as has been observed again and again by writers more eloquent than I, it is in the nature of time to appear shorter when viewed backward than forward.

Longer because January 29th, the day of my official celiac diagnosis, wasn’t the first time I ditched wheat, barley, and rye. Almost three years before, I’d experimented with a diet low in pretty much everything thought to be tough on the gut (that’d be FODMAPs, and includes wheat, rye, and barley); I’d dabbled in “low-gluten” eating (which is basically a joke); and I’d done a whole-hog six-week gluten-free diet trial half a year before. Although it’s been six months of celiac-induced GFdom, gluten has been on my mind for longer.

Also because it’s been an intense six months. “I’m not sick because I’m stressed; I’m stressed because I’m sick”—how many times have I made that response? I still think it’s true, but it turns out not to be true that a diagnosis and prescription could take my stress away (hum that to the tune of the Berlin song). The certainty has eased some worries but added others: that the healing isn’t moving fast or far enough, that XY, or Z might have gluten in it, that I’m driving everyone crazy by talking about it all the time.

In honor of this date, I originally thought I might reveal all of my celiac symptoms on this blog (which you may or may not have noticed I’ve been quiet about, even as I bemoan our collective inability to talk about some of them). This wasn’t because you likely have any desire to know them but because I felt it would be terribly satisfying to cross off all those that had gone away.

But, after the sixth month, the truth is that few of what I believe to be celiac symptoms have actually resolved themselves. The gastro stuff is getting better, a little, but I still don’t know if the rest even are celiac symptoms. All I’ve gotten so far are “maybe”s and “we’ll see”s. To list what remains would be to jinx it.

So instead, dear readers, on this belated half-anniversary of my gluten-free rebirth, I leave you with only a promise: that six months, or twelve, or eighteen, or however many it takes from now, I will have crossed off more of that list. That I will not again succumb to the kind of complacency about my own well being that led to three years without a diagnosis. That I will beat this thing.

And—to answer my friend on Twitter—that no matter how long it takes, and how long it seems to take, under no circumstances and for no reason will I ever “cheat.”

Not even for cake.

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